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Showing content with the highest reputation on 12/24/2010 in all areas

  1. Hope this isn't depressing but it is probably important. Turn back the clock, when I first got HPPD it was coupled with fibromylagia and chronic pain/fatigue. It was diagnosed as I had the pressure points and soreness in my muscles. I guess one of the lay theories behind fibromylagia is that your pain/pleasure sensors get turned around after say a traumatic event(bad trips?). I was lethargic most of the time and couldn't even get out of bed most days. I was literally like that for several years, just horrible really along with HPPD, just willed myself to survive I guess, hard to think about. It's probably worth mentioning that I was in a car accident where I got whiplash while on LSD but I was already dealing with the fibromylagia, chronic fatique, and HPPD prior to that for almost a year, it just made it worse and that was about when I finally stopped the mad track that I had gotten myself onto as a misguided confused teen which I am not now. The fibromylagia dissipated over the years but I would still tire out relatively quick. I still had chronic pain though and bouts of fatigue. We've got a temperpedic bed at my house now and I couldn't even sleep in it without severe lower back pain by morning which didn't make any sense to my girlfriend because she slept like a baby and never had any pain, along with every other person I know that has one. A lot of nights I would end up moving to the couch because it was easier on me. Before I started taking naltrexone I had a script for Gabitril, the GABA reuptake inhibitor. I had pretty high hopes for it because of the supposive GABA connection with HPPD. I didn't last on it long as the side effects were horrible, you should read the profile, it can induce temporary mental retardation if titrated too quickly or just being on a high dose among other things, I'm being serious, look it up, plus it gives you this uncool drunk feeling that you can't shake, amnesia too. It can lower you seizure threshold and just all sorts of crap, it was pretty bad news for me. The one thing I did notice on it if you can call it a positive was that it numbed my nerves meaning like literally all my nerves through my body and I could sleep on the temperpedic without pain just due to not being able to feel almost anything, I couldn't even feel my jaw bite down and what kind of life is that? But the other side effects and just the games it started playing with my HPPD mind which began to snowball were way too much to call it a benefit. I guess it numbed my nerves in the same way Lyrica or something would, It was different but just I don't know anything else to compare it to. That was another reason that when I started taking naltrexone I didn't have much hope for it. Oh boy here we go again with another one I thought thinking of the utter failure Gabitril had just been along with others. But naltrexone hasn't been that way at all. My energy has improved along with brainfog, and just all together being more together. I can now sleep in the temperpedic bed without my lower back killing me by the morning and I just don't know what else I can say about my experience with naltrexone, thank you god! Like I've said before my DP/DR is practically gone as of now, yeah I've still got some visual symptoms, a little less, but the tiredness, off and on pain, and DP/DR are almost non existent. Today I lifted weights and road a bicycle around the neighborhood and it felt good. I guess those pain/pleasure sensors getting crossed up could account for the pain I was experiencing say when I was trying to sleep on the temperpedic as it always seemed to originate from the back left of my head. One of the papers I posted pointed that some theory points to DP/DR originating from or being a factor of disregulation of the opiod system. I guess I'm playing lay doctor but it would kind of make sense that chronic pain, fibromylagia could get lumped in to that as well. In my experience I don't doubt that fibromylagia, chronic pain/fatigue patients are finding relief with naltrexone because you could probably lump me in that group as well, even the doctor that prescribed it to me said they're find all kinds of far reaching applications for naltrexone and the amount of positive feedback from the internet is rather remarkable. I can just talk from my experience, I didn't write shit about the great successes I had with Gabitril because there was nothing for me to say. Everything I've been writing is real, why would I come on here and bullshit all of you people. I'm hoping that by writing this out that hopefully others will not have to go through the long draining sometimes hopeless feeling of trial and error I went through. I want to see progress for everybody and a better way forward for members of this community. I hope this post doesn't get misconstrued or is too depressing, I've had to walk some pretty rough shoes dealing with this. Or for someone to say aha! that's why it would work for you and why it wouldn't for me, man, at least give it a shot. For robbie, when I started naltrexone, it was only 12.5 mg for the first couple of days, that was enough to knock me out for a couple of hours until I came back to and noticed a slight imporvement which steadily increased over time. Even the low dose naltrexone forums say there's an adjustment period so chin up man, stick with it for awhile please before you discredit it. Oh, and it is recommended to be taken at night for the low dose therapy if you hadn't stumbled across that already too. Good luck with it, I'm rooting for you. Robbie, are then fatigue, brainfog your main ailments, if not, what is? I noticed too that I get a little more benefit from taking a good multivitamin than prior. Good luck guys Joe
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