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  2. Maybe there is a way to cure or treat HPPD by replicating what happens in the brain during mania without actually inducing full blown mania? Functional neuroanatomy of mania
  3. Very interesting and the first time I heard of it. I remember watching this schizophrenic on YouTube who also had HPPD and he never mentioned that and he would say he could tell the difference between his schizophrenic hallucinations and HPPD pseudohallucinations.
  4. Yesterday
  5. Hi John, that's an interesting observation and one i'd never heard of before. I can only assume certain chemicals are being released during those episodes that help with visuals, (Gaba?). Hopefully some of the more scientifically minded posters can add their thoughts.
  6. Last week
  7. I'm around the same time frame as you (11 years). It gets a lot better but it's still very distracting for me at least. Like just now I felt like I was semi tripping again and at night the headlights from bicycles, motorbikes, scooters, cars, etc are like overwhelming. Sometimes certain noises become like overbearing. Thank you and I wish you the best as well!!
  8. It's been 12 years since I got dpdr and hppd now. I still have symptoms like afterimages, especially during nighttime and when I get tired. And dpdr occurs from time to time. Even though some symptoms are still there, they are no longer the focus of my day as they used to be during the first 3-5 years with the disorders. It is a blessing to wake up and not have my dpdr/hppd to be the first thing I think about in the morning. To anyone who is in the beginning of this suffering journey: you will get through it. Life will get easier. I still haven't returned to how I was pre-disorders. But I have accepted that I might never again feel "normal" as I was before. I honestly don't even remember what it feels like to feel normal. This has become my new normal and I no longer feel fear in being this way. I do grieve the loss of my old normal, but life feels much easier now that time has passed. I wish everyone luck and strength on their journeys. And once again. Forever thankful to this forum and people here who comforted me in my biggest time of need.
  9. AmitV

    VSS or HPPD?

    Yes SSRI trintellix started it. As far as I’m aware trintellix is a glutamate agonist and was modelled as an antidepressant after mushrooms.
  10. A bit more on it: https://pharmatimes.com/news/neurona-secures-120m-to-advance-lead-cell-therapy-candidate-for-epilepsy/ But sadly only 30-35% get past phase 3 trials, and this is a loooong process, we're talking a minimum of 5+ years. https://g.co/gemini/share/a5bfbd1240f9
  11. Whoever this person is, is trying to imply that HPPD is a functional neurological disorder. Which comes with hypervigilance and severe anxiety. The problem with this theory is drug induced akathisia and parkinsonism is 80% of times diagnosed as hypochondriac or FND. When in fact it is a real condition.
  12. bomb exploding in the head is this: https://akathisiaalliance.org/wp-content/uploads/2024/01/Guide-for-Clinicians-012224-editable.pdf https://rxisk.org/pyridoxal-5-phosphate-and-akathisia/
  13. I'm bipolar 1 and I have had two manic episodes one at 30 and one last year at 38. When I'm manic all my HPPD symptoms go away. When I come down from the mania and shoot down into depression they are back really bad. Thoughts?
  14. Earlier
  15. Thanks for sharing your experience with Russian peptides like Pinealon, Cortexin, Cerluten, and Cortagen. It's intriguing to hear how they've had positive effects on you, especially in reducing afterimages and cognitive enhancement. Your brief but insightful post sheds light on potential treatments that others might find beneficial. I appreciate you bringing awareness to these peptides, and it's always valuable to hear personal experiences with different supplements. By the way, I came across some info about Protein Overload in hair recently, which you might find interesting.
  16. I started active vitamin b6 (p5p) for treating drug induced akathisia. Turns out it increases production of the liver enzyme that delivers brain gaba. An immense relief from anxiety, agitation. Noticed my visuals improved 40% over 2 months. Still have some crazy stuff. Who knows someone might get a bigger benefit out of it. No side effects. I’m up at 500mg/day. Split into 3 doses per day. Some people report nausea and headaches over 100mg doses. But my understanding is in some people 50mg is enough for an impressive improvement. Thought it was worth sharing here.
  17. Central Scotland here, where we are terrified of the men who terrify men and sheep.
  18. You need to taper very slowly if you decide to get off. The taper might even take a few years. My flare up from Phenibut is slowly baselining, though. It is a voltage-gated calcium channel blocker but has some GABA-b agonism.
  19. Hppd seems to be a functional neurological disorder. Symptoms can morph between range on any FND symptoms including head pressure and dizziness. anyhow my best suggestion is the steady coach program on YouTube. It’s free. You will understand the core concept of stress and past trauma, how to resolve in order to resolve symptoms. https://www.nhsinform.scot/illnesses-and-conditions/brain-nerves-and-spinal-cord/functional-neurological-disorder/
  20. I don't know. I've never been through the experience. I have symptoms even on the benzos lol. I'm used to it.
  21. Hello guys I Have a extrem case of hppd with extrem Brutaliy symptoms and i think i m the first Person in the World with the most brutal hppd i can only say hppd is not an obstacle to life Do What you want before You die life is Short I took a high dose of quetiapine plus 5g speed and 1g pyschedlic stuff This led to overdoses and strong interactions where I got my HPPD I have all hppd symptoms in extrem case And Take now lorezepam I wish all you the Best hppd is not a obstacle give never up Best greetings from germany Edit: Hppd Guy
  22. I'm doing my best to understand.. Are you saying that you have been given an incorrect diagnosis of schizophrenia and it's only hppd ? If this is the case... I would get away from your silly doctor... Find a doctor who acknowledges hppd, dump the antipsychotics and possibly start trying mediations that are most commonly used for hppd etc
  23. I know most antipsychotics exacerbate hppd unfortunately... It may be some trial to find one that you can tolerate.. whilst the same time.. some additional medication for you hppd if needed. It might be an idea to change doctors to find one that acknowledges your hppd etc I'm not a doctor.. these are just my thaughts. It's a possibility.
  24. I have severe hppd, when describing symptoms to psychiatrist... He was like "oh you may have underlying schizophrenia also" This is a misdiagnosis He has put me on a high dose of antipsychotic Seroquel 150 mg Generally Seroquel heightens visuals, Tho turns me into a sedated zombie so I cannot react as much too them. I don't like the side effects of Seroquel.
  25. Came on there trying to help... ?? Really see your empathy ozzing NOT More like a massive insult.
  26. See clinical guide. I fear some are still experiencing the subjective experience of it. https://akathisiaalliance.org/wp-content/uploads/2024/01/Guide-for-Clinicians-012224-editable.pdf https://rxisk.org/pyridoxal-5-phosphate-and-akathisia/
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