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  2. Just looked at the wiki, any reason you think it could help?
  3. Yesterday
  4. I got married young and had kids in my mid-20s. This was when my symptoms were at their worst. I was also going to college full time and working part time. My wife was also a full time student and working part time. Having to be focused and moving all the time is what kept me pulled together. Otherwise, I think every atom in my body would have disintegrated. I'm not trying to say "hey it's easy" or that I'm somehow special. I'm nobody special, trust me. All I'm saying is that it's possible to have kids and raise them with this disorder.
  5. Similar story to me... Had mild hppd from 13 or 14, then severe from 17... i'm now 40. My advice would be to taper down from lorazepam before thinking about starting a family... After 10 years, it could be a hard, long and stressful battle (sorry to scare you, but it is likely). Good luck, i hope things work out and you can enjoy your family.
  6. Last week
  7. 3 yrs.
  8. Anyone tried it? I'm curious.
  9. Re: reading difficulties The space around the words became very distracting because I would see shapes, movement, and colors. I kept getting the context of the story line confused because my eyes were jumping around so much. Most of that has gone away as long as I stay focused on what I'm reading. If my mind starts to wander the shapes and movement comes back but not nearly as bad as it did when I was younger. I'd say I'm 90 percent recovered from my reading difficulties. Like meditation, I read almost every day and have for decades. I think some of my recovery was brain retraining. I hope I answered your question.
  10. http://nutritiondata.self.com/ This might be helpful for you! I do a keto diet as we have PM'd about. Its a strict one but it treats me right. Below is a link to some evidence for a calming action https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2722878/
  11. NAC

    For some reason NAC gives me horrific anxiety attacks. A few other people around the internet report this as well. Low glutamate in certain brain regions may account for this as lowering those levels further has a downstream effect on reducing GABA. No way to tell though >_<
  12. I find this REALLY fascinating since keppra does modulate opiate functioning. "These results show that levetiracetam produced antihyperalgesia which is at least in part mediated by GABAA, opioid, 5-HT and α2-adrenergic receptors, in an inflammatory model of pain." - https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2989589/
  13. Got to let the brain recover. No stimulants (including caffeine). No drugs or alcohol. It sounds awful but so is living a life unfulfilled because youre disabled from this! Have hope. No other choice but to cling to hope
  14. Im using a testing company out in california called IGNEX. They are very reliable. The test came back indeterminate and im supposed to get a follow up but its been hard. I've had hppd for years unfortunately. The test that came back as a maybe for lymes indicated that i contracted it recently. My VS has not changed in about two years.
  15. We also don't know how briv is different from keppra. Sure it has higher affinity for antagonizing glutamate functioning but does it also have that for the others? The studies done on briv were meant for treating epilepsy so its hard to know.
  16. The thing is we don't know why keppra helps those with HPPD. I know that the glutamate suppression with briv is a lot higher but who knows if thats why it helps. Keppra has a crazy amount of indirect antagonism on receptors. Off the top of my head dopamine, serotonin, opiate, acetylcholine, and glutamate receptors are all influenced.
  17. Hi everybody, I'm from Spain and im soffering this fucked shit HPPD since I was 15 yo. To the beginning i had several mild psychotic attacks. These were horrible, but suddenly they went. First symptoms were vs, halos, flashes, ed, low libido,depressión, anxiety, dp/Dr, panic attacks,... Nowadays i have a regular Life. I have a good job, i try don't to think about HPPD, i have girlfriend, but i feel that i have to give another Big step because we wanna hace childs and everyday since 10 years ago i take 1 pill of lorazepam and 1/2 of deprax, just to leave me sleep 6-7 hours at least. I want to leave them because i feel memory loss and other bother sympthoms. And because i want todo face It without drugs. As well i would like to know if someone else has soffered ed even to with Viagra. I don't know if it's a secondary HPPD effect, but i would bet for It. What do you think? My BEST wishes for all. I'm sure we can get much better and cure this shit. Sorry about my english.
  18. Greatly appreciate your response and input to my questions Jay and MacDoc. MacDoc, if you don’t mind me enquiring, what symptoms concerning the reading difficulties you experienced were the ones that improved? I practiced mindfulness meditation for s few months but no where near as consistently as I would desire to in order to experience the beneficial effects it can produce. Thank you both for the suggestions.
  19. How long did it take for them to get better? What do you experience? How are your visuals affected by your drinking, both the same night and following days? Dang, the psychological bit sucks. Hope it gets better!
  20. For me, alcohol didn't make my symptoms worse. At least I don't remember it making my symptoms worse. I was in my 20s when I put down the bottle. I can't imagine how I'd react to it now. As for hppd and reading, I had a horrible time reading for years. The spaces between the words pulled at my attention as much as the text. I'd see all sorts of shapes, and movement between the words. I also had a very hard time understanding what I was reading almost like I had developed dyslexia. I just kept forcing myself to read and most of those symptoms have gone away. Took a while though. Getting through college was a challenge! I'm repeating myself because I mention this in most of my posts. A daily meditation practice helped immensely with anxiety. It took almost a year to "kick in" but once it did my anxiety got much better. 20+ years later and it's as essential as air. My symptoms vary from day to day but over the long haul they've improved significantly. I still have very noticeable visuals but otherwise I feel fairly "normal" (whatever that is). People who know me may dispute my claim that I'm in the normal spectrum (: I hope the jumble I wrote here has something of value. Hang in and take care.
  21. Natural methods is the approach I took. When I was younger I used to drink but that was a dead end. Medications seem to very helpful to some. Personally I don't trust them and don't trust myself with them. I've mentioned meditation in many of my posts. I keep bringing it up because I can't imagine life without it.
  22. Alright thanks, definitely will be giving those a try. Appreciate everyone im glad to see there's alot of advice and support on here.
  23. I find that any more than 2 beers gives me a spike in symptoms the next day... If i get properly drunk that can last for 3-4 days. I allow myself 3-4 pints on a thursday, then take 1mg of clonazepam the next day and all is fine. I do get drunk occasionally, and clonazepam to the rescue again (1.5mg). Not the most sensible advice, but we are probably due a break , here and there. (note - don;t take clonazepam and alcohol at the same time, unless you like prolonged black outs).
  24. I enjoy it every once in a while, but more often, I am bothered by the symptoms. Take Saturday night, for example. I was completely sober, aside for a little too much caffeine, at an EDM show. At one point in the show, my hallucinations got so intense that the people in the crowd around me took on a zombie-like appearance. Their faces were crawling and moving. It took me a few minutes to calm myself, and I won't soon repeat that experiment. It was extremely disconcerting.
  25. Yes, you have HPPD. Benzos can be a temporary fix, but in my experience, they listened in effectiveness the more that I took them. I often have trouble focusing, so yes, blurry vision as well. Exercising and meditation is a great addition to any life, and it does help our condition. I highly suggest giving it a try.
  26. i have a lot of the same symptoms you do, it sucks. i get the blue dots that vanish, i get the static that forms into shapes at night, i get the words in my head when i try to sleep, i get bad starbursts, i get the numb feeling in my hands all the time. light sensitivity and after images. i have everything, just not too bad, so it's manageable. i've been managing in my junior year pretty fine so far, i don't notice it too much in school, at night and at home is when i notice it the most
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