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  2. Hey my symptoms are. I have breathing walls but only when i Think alot about it. And i Feel dizzy AS if im on a boat. And some vertigo. And some afterimages. Visual snow. And alot of dpdr. And alitle tracers but that are my only symptoms. My doc says it probably just was the dpdr Doing it. But i kep beeing affraid that i have hppd.... DO I?
  3. There won't be a cure in 5-10 years most probably. Only if we achieve some kind of singularity in which most problems can be solved.. but if we keep at the same speed then most probably we won't have a cure in even 40 years. How much has changed since 2003 for HPPD? I would say almost nothing. Why would be expect to change much in the next 10-20 years? A self-inflicted mental problem which occurs to a very small amount of people who is unlucky enough. There is bigger fish to fry. Exercise, diet, maybe some supplements, therapy, treating comorbid problems like depression or anxiety, mindfulness, maybe medication, acceptance.. There isn't much more you can do. I also have constant suicidal thoughts, but I would say that that is because of depression rather than HPPD. So many years lost. Best of luck.
  4. Today
  5. Sorry for asking this and being such a pain in the ass but I'm a bit desperate. When do u think there will be a cure for hppd/vs ? 5 years from now ? 10 years? Or 20? And what will this cure be like ? A pill that can undo these symptoms? Or something expensive and complicated like gene and stem cell therapy ? some ppl here believe that hppd/vs are caused by neuronal death others think hyperactivity. on the fb visual snow group Jen Ambrose had said that Dr Goadsby told her vs is treatable and if the research continues a treatment can be available soon . Some vs patients who visited dr Goadsby's fellow researchers at UCFS were told the treatment can be available in just 5 years if everything goes well !! However there aren't enough donations so the research will most likely stop😭. I'm constantly having suicidal thoughts and I just want to know whether there is light at the end of the tunnel or not . Ur one of the experts on hppd and vs I hope u can answer my questions.
  6. Yesterday
  7. Certainly, you are right KB. They are fad-like these diets. When I was exploring Ketones, I remember it being linked to the Kreb's Cycle. [I know a bit about stuff after 10 years of study but I got a C- in chemistry in HS]. If I remember correctly what exactly I was studying was adipose fat and Ketones and the Kreb's cycle and hormones and diabetes. [What is interesting is short-to-medium chain fatty acids seem to cross the BBB. Making some fatty acids psychotropic. Which is a tad scary]. Sugars and Carbs are the first things burned off. Bottom line if you are burning off things at a decent rate daily in the way of locomotion, your diet will factor less. Won't necessarily help HPPD but your body will seem to a doctor to be of health, generally. If you are sedentary then you have to sort of rethink some things: a. being your DNA disposition to metabolism b. how reactions to external forces affect physiology. Historically, people had thought [in the 1950s or so] that stomach ulcers were caused by stress. But it was found that ulcers were caused by the h. pylori bacteria. Nevertheless, I think that digestion can be upset by external stressors. ie- diarrhea and GERD.
  8. I just got to a breaking point about this time last year where I decided I was gonna do whatever experimentation I could to see if it would help my symptoms and diet is one of the areas I tried to focus on. I did some studying and arrived at paleo probably because I'm more into natural health and thought it was the diet that best corresponded with that belief system. Truth is, I knew nothing of dieting or health at the time and just thought, based on everything I read, that it sounded like it could help me the most. I've since realized that all diets are pretty much fads and that healthy eating is not complicated: eat mostly vegetables, fruits and whole foods; eliminate excess added sugar; and take it easy on dairy, gluten and meat -- at least this is what works for me. In terms of carbs, I wouldn't say I'm deficient but I also don't go out of my way to eat starchy foods. I eat lots of fruit, which of course helps, as well as beans, healthy grains and starchy veggies here and there, but I've honestly eased up lately because I have a hard time processing lots of carbs due to additional health concerns. In terms of keto, I've heard of it working for epileptics, so given how well some of us respond to anti-epileptic medication I guess I could see the connection there as well. Wouldn't that mostly be due to high fat which feeds the brain? Also, I thought fire was what helped our brains grow abnormally large?
  9. Yeah, I thought of that too, I just don't know of any such studies that verify the existence of lids in other drugs. If so, then perhaps there could be something to it. But then again, how could this account for Visual Snow Syndrome, wherein people get the same set of symptoms without the use of drugs? And the same goes for benzodiazepine withdrawal and other neurotoxic chemicals that can induce HPPD-like symptoms. If I remember correctly in the recent brain imaging studies from LSD there are certain parts of the brain that become more active and others that diminish, which is part of what alters consciousness during the trip. The links above therefore make me wonder if those parts that become less active just never properly reboot, which could account for why the symptoms of HPPD so closely resemble those of the actual trip.
  10. Tom Petty at Red Rocks. There's always massive amounts of pot floating about no matter who's playing so I'm just not sure that's the best environment to be in even though it is outside. I really just don't think I could handle a set back after how hard I've worked for the last two years to get where I'm at.
  11. kb fante, i missed your previous post on this. Are you sure this lid effect does not occur with all hppd-inducing drugs? Would it not be possible that these lids are on multiple receptor types, thus explaining hppd being induced by multiple drugs?
  12. As a nutrition graduate I felt the need to respond to this. Mgrade you are right in some ways, potatoes and tomatoes are part of the nightshade family and indeed can have some anticholinergic effects. Whilst potatoes are in the same family as datura they do not contain scolpolomine. Im sure you wasnt getting at that but just in case people on this board start avoiding potatoes for that very reason hahaha.... That being said, potatoes do contain glycoalkaloids that can be poisionus in large doses. However, you would generally have to eat a fairly large amount to have any adverse effects. I personally eat potatoes very occasionally and never really noticed a problem, unless I eat a large amount before bed it sometimes keeps me up for a while, but if you have an intolerance to them AND with us having HPPD and sensitive brains, it wouldnt be out the realms of possibility they have an effect. For the past 4 years or so I developed an intolerance to wheat containing products. I can eat it in small amounts but if I eat too much I can have GI issues, brain fog, increased anxiety etc. I think in this case you are in the know about your body and if potatoes don't sit well....dont eat them! That goes for any food regardless of its contents. K.B.Fante, I'm interested in what made you choose a Paleo diet? The Paleo diet has been somewhat misconstrued and changed into a fad diet. Whilst there are some aspects of the diet that can be helpful I think it can also have some negatives. You mention you had cut out refined carbs, which is a good thing, but are you also eating a low-carb diet in general? High carb diets are what helped our brains to grow and us as a species to evolve over time. We need 25-30% carbs a day just for proper brain functioning. I see some people on this forum are a fan of keto diets to reduce their symptoms, which may be the case, but I would take a bet they are also hindering any sort of recovery, or at least decreasing the rate of. I would say it is probaly more the increase of plant foods that you consume as part of the paleo diet that has been beneficial for you. Not trying to take shots at your way of living or anything, it has obviously helped you thus far, I just wonder if theres some other changes you can make
  13. The second hand smoke thing is weird to be honest man. Theres been a few occasions when I'd been around someone smoking but it never effected me at all. I had been quite ill with tonsilitus a few weeks prior and that had increased my visuals somewhat anyway, And I was under a lot of stress from writing my dissertation, so its likely I was in somewhat of a weakened state. Also, it doesn't really make that much sense, I was outside and not exactly stood over the joint breathing it in. You would assume the majority of THC is breathed in by the user and that any THC coming off the end would dissapate into the air. So essentially I probably breathed in about a 10th of a toke or something. Its frustrating though, I understand, Its just so risky doing anything. I guess if the concert is indoors then it plays a higher risk. Who were you going to see out interest?
  14. Treatment for Major Depressive Disorder http://journals.lww.com/clinicalneuropharm/pages/articleviewer.aspx?year=2013&issue=01000&article=00005&type=abstract https://www.jci.org/articles/view/85033
  15. Consider eating eggs with peppers, tomatoes or potatoes because foods in the nightshade family may be anticholinergic. The acetylcholine receptors tend to be competitive, so I figure adding eggs which is full of choline is not a terrible idea. Physostigmine is the antidote for acute nightshade poisoning.
  16. Tomatoes and Eggplants and Potatoes are all from the nightshade family. The Jimson weed or Datura plant, mandrake, belladonna, tobacco, angel/devil's trumpet, I believe are all a part of that family. Largely, it means that they may contain poisonous alkaloids, much in the plant itself, seeds and roots. Drugs like scopolamine and atropine can be found in these plants. One was used a lot in eye science and the other in emergency rooms, respectively. These are both very important drugs ....BUT.... Be careful! I also proposed the idea of perhaps a distillation of Jimson Weed would be an interesting plant to look into mainly for the photophobic effects it manifests. So when you are off the drug after, you will not be so photophobic. Having read Carlos Castenada as a young adult, I thought it was an interesting thought. I am sure it will be investigated in the future. Right now I sort of fear the mishandling of these plants as has been the case in some S. American countries. Certainly, a large amount of these plants can kill you or cause lasting effects such as that of HPPD. So be careful with these plants and never be around people who would use these plants for harm.
  17. I mentioned this once before but just thought I'd make a post to bring awareness to this subject. Basically I went on a paleo diet about a year ago and long story short it certainly helped my overall health but didn't solve my HPPD as I had hoped (I was desperate, obviously). Part of the paleo diet is to cut out potatoes, refined carbs, along with all sorts of other foods we don't even think twice about eating -- which I did -- and I felt pretty good overall. But, as the months went by it was pretty clear it wasn't solving my HPPD and so I began to incorporate some of the forbidden paleo foods back into my diet, including potatoes. What I've noticed recently is that when I eat excess potatoes or any other vegetable from the nightshade family I sorta feel the same way I do when I drink caffeine. One night I woke up sweating with a racing heart and crazy anxiety for no reason at all after eating a lot of potatoes. And today after eating a whole bell pepper for lunch I felt almost as if I'd drank a small cup of coffee as my symptoms seemed to flare up and I just felt nervous and sorta crazy. Anyway, I just thought I'd post to see if anybody has experience with this. If not, perhaps it's something to consider keeping an eye on. Here's an article about how nightshades can cause anxiety in people with nerve sensitivities: https://www.psychologytoday.com/blog/diagnosis-diet/201607/these-5-foods-and-substances-can-cause-anxiety-and-insomnia
  18. Huh, interesting. A lot of people have reported pupil dilation but I guess it just goes to show how wide ranging HPPD is and how it varies with each person in every case. Speaking of second-hand smoke, I have tickets to go to a concert next week but I'm starting to wonder if I should even go since I know there's gonna be tons of second-hand pot smoke. I just don't think it's worth it even though I've had the tickets for a year and paid a lot for them.
  19. After a year and a half of sobriety I don't miss getting high at all. And I did drugs for a decade. Find some new friends.
  20. Last week
  21. No issue with pupil dilation with me. Back when I used to dose they would be as big as saucers except when I took DOM then they were like pinpoints.
  22. Yeah dont do it bro. I was pretty much at 60% and had very mild HPPD, to the point where I even questioned whether it was just the DP/DR i was still dealing with. About 2 months ago I was stood near my friend whilst he was smoking a spliff (didnt even have that much in it as well) and I've had increased visuals and increased DP since. I wouldnt do it if I were you. Out of all the drugs, I do miss weed the most, so understand how you feel. The fact that your even posting this question makes me assume you are aware of the risks. Its just not worth it man
  23. Well I'm about a year and a half in now and these days I struggle more with the DP/DR, fatigue, dizziness and headaches/pressure. Ive been dealing with somewhat of a setback for the last 2 months due to secondhand smoke (at least I think it was that) so my visuals have been slightly worse. So at the moment visually I deal with: -Light visual snow. Easily ignorable at this point, only really see it in certain lights or when Im having a bad day -Light negetive afterimages. Mostly caused by light sources or sometimes text against backgrounds with an opposing colour. -Slight morphing. This one returned after the pot exposure even though I hadn't experienced it in over a year. In fact, its not really morphing, my vision does this thing where it moves from side to side slightly. -Streaks of light created by bright lights. This is my most annoying symptom and really winds me up when im outside at night. Any time I blink, I get like a laser connect to my eye from the light source. Really pisses me off haha -Very mild occasional ghosting of bright lights -Motion blur. Sometimes hard to focus on things that are moving fast or if I move my phone in the dark, I dont really get tracers and never have but it blurs whilst its moving. Think this might related to DP/DR -Bouncy, and sometimes choppy vision. This had got so much better before the setback but has made a swift return. -Floaters and other shit when I look at the sky. Annoying but doesnt really bother me. -Tinnitus In the first 5 months or so I had really bad visual snow, morphing and movement of objects, moderate negetive afterimages (never had positive ones) and extreme mental symptoms to the point where I felt like I was living in a dream, cried all day every day, could barely get out of bed etc etc. Despite this I've never noticed an issue with my pupils
  24. I also think the global workspace theory of consciousness is interesting in connection with DP-DR symptoms wherein people feel numb, like they're stuck in a dream and are generally disconnected. I'm a firm believer that we select words for a reason and that when we say we feel "disconnected" it's because we are.
  25. Maybe its a form of memory like in PTSD. Your brain just isn't able to forget and move on from the trip for some reason.
  26. I posted a link to an article that talked about the receptor lid a few weeks back and thought perhaps HPPD is a result of that lid staying permanently shut -- but then again, why do people get HPPD from all sorts of different drugs that don't have this same effect? That's what I keep coming back to. HPPD is obtained in so many different ways through so many different types of drugs that affect so many different receptors. I just think it's strange how the symptoms of HPPD are basically those of the actual trip. As the popular aphorism goes, it's a trip that never ends.
  27. You're basically giving yourself two choices: Smoke weed so you can fit in and risk having severe stress and HPPD the rest of your life, or be open with your friends about your condition, how you're struggling and how you can't do any drugs, and recover and live a normal life again. Try and take a step back and realize how short sighted it would be to smoke again and risk damaging your brain forever.
  28. So im 17 and summer is coming up in one week. I've had pretty minor hppd for about 8 months, and I just want this to go away. All my friends smoke weed and I feel so left out not smoking with them. This leaves me pondering a crucial question: should I just say fuck it and start blazing again or should I dedicate this summer to recovery and mental growth to see if I can still recover? I just miss smoking so much but if I knew for a fact that I would fully recover in a year I would be willing to not drink or do drugs until months after I am fully recovered. What should I do it's killing me? My symptoms are: visual snow floaters slight trails in some lighting walls breathing if I pay attention color enhancement brain fog
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