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  1. Yesterday
  2. So I've been dealing with HPPD for the past few months. Visual snow, light tracers, color shifts, halos, floaters and what not. However, I have this thing which doesn't happen everyday and happens only 2-3 times a day (if it happens) : When I focus at smth or someone, I get a small black dot with basically nothing in it. It is like suddenly, a very tiny part of my eye looses vision. Happens for a second only. Anyone else has that ? EDIT: Now that I think of it, if I look at a screen, usually in the dark with the device on dim settings and close to me, I see very very small pink dots moving and floating around. Also, they move around at about 15 fps, just like a computer who can't process a video fast enough and ends up with messed up framerate. What's going on xD Was wondering if anyone else has these weird symptoms which I could not find on the web.
  3. hppd

    I personally don't have experience with antipsychotics, but after having HPPD and obsessively searching stuff online for about 6 months now I can pretty confidently say don't mess around with those. Nearly everyone says its help is only very, very short term and that once you decide to go off your visuals will be unbearable. So you could either keep taking benzos, get better temporarily to the point where you develop a tolerance, and then have an insanely horrible experience tapering off them, or just not mess with it at all.
  4. Hey all, been a bit since I've posted here. I've been holding up well, and even though I get the occasional DP/DR, I'm managing. I'm heading back to school real soon, and was wondering if anyone had any experience with non-stim ADD meds. Used to take Adderall, but had some really bad DP/DR the day after, and have read that in general stims are not great for HPPD. Doc just prescribed me some Intuniv ER (Guanfacine HCL ER) and said it should kick in after a couple weeks. I'm worried if I should even start taking it though, and pretty much no one has any input on non-stim ADD meds with HPPD online. If anyone's had some firsthand experience, or even some scientific as to why it should/shouldn't make my HPPD worse, I'd greatly appreciate it
  5. Hey all, been a bit since I've posted here. I've been holding up well, and even though I get the occasional DP/DR, I'm managing. I'm heading back to school real soon, and was wondering if anyone had any experience with non-stim ADD meds. Used to take Adderall, but had some really bad DP/DR the day after, and have read that in general stims are not great for HPPD. Doc just prescribed me some Intuniv ER (Guanfacine HCL ER) and said it should kick in after a couple weeks. I'm worried if I should even start taking it though, and pretty much no one has any input on non-stim ADD meds with HPPD online. If anyone's had some firsthand experience, or even some scientific basis as to why it should/shouldn't make my HPPD worse, I'd greatly appreciate it
  6. Last week
  7. There is not much that I know of, these are two links I had stored: http://amrglobal.powweb.com/category/hppd https://www.theravive.com/therapedia/hallucinogen-persisting-perception-disorder-dsm--5-292.89-(f16.983)
  8. First of all thank you for the answer. I will consider changing doctor but since it is my doc from 2016 I would like to prove him somehow that HPPD exists and it's treated by other meds than anti psychotic(he thinks it's the same condition which he learned in medical school). Are there solid proofs of exisiting HPPD? Are there any studies of the treatment? I would like to be extremely prepared for the next visit to avoid treatment for conditions which are not related to me.
  9. Don;t let doctors dictate your condition... If you think you have hppd, keep changing doctors until you find one that believe you and is willing to learn about it. Doctors will often say you are psycotic or depressed, it is easier for them to understand and "treat" (even if it makes you worse)
  10. my symptoms stay the same... visuals, dpdr etc... but I do get days where I feel in a good mood or bad mood, with less or more anxiety. (sunny days seem to make me feel better)
  11. I have just came from my doc, he prescribed me biggers dosages of finlepsin and aimsulpryd. Next visit will be after a month, he claims that I'm close to psychotic state. I'm not sure about anything, going to do whatever he recommends because I don't see any alternative.
  12. Some research I found on anti-depressants efficacy and comparisons with placebo. Worth a read. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4172306/ From Harvard Antidepressants and the Placebo Effect Even the small statistical difference between antidepressants and placebos may be an enhanced placebo effect, due to the fact that most patients and doctors in clinical trials successfully break blind. The serotonin theory is as close as any theory in the history of science to having been proved wrong. Instead of curing depression, popular antidepressants may induce a biological vulnerability making people more likely to become depressed in the future. The most commonly prescribed antidepressants are SSRIs, drugs that are supposed to selectively target the neurotransmitter serotonin. But there is another antidepressant that has a very different mode of action. It is called tianeptine, and it has been approved for prescription as an antidepressant by the French drug regulatory agency. Tianeptine is an SSRE, a selective serotonin reuptake enhancer. Instead of increasing the amount of serotonin in the brain, it is supposed to decrease it. If the theory that depression is caused by a deficiency of serotonin were correct, we would expect to make depression worse. But it doesn’t. In clinical trials comparing the effects of tianeptine to those of SSRIs and tricyclic antidepressants, 63% of patients show significant improvement (defined as a 50% reduction in symptoms), the same response rate that is found for SSRIs, NDRIs, and tricyclics, in this type of trial (Wagstaff, Ormrod, & Spencer, 2001). It simply does not matter what is in the medication – it might increase serotonin, decrease it, or have no effect on serotonin at all. The effect on depression is the same. What do you call pills, the effects of which are independent of their chemical composition? I call them “placebos.” https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4592645/ From Duke and Brown University Antidepressants versus placebo in major depression: an overview As of now, antidepressant clinical trials have an effect size of 0.30, which, although similar to the effects of treatments for many other chronic illnesses, such as hypertension, asthma and diabetes, is less than impressive. https://www.ncbi.nlm.nih.gov/pubmed/22147715 Comparative benefits and harms of second-generation antidepressants for treating major depressive disorder: an updated meta-analysis. Meta-analyses and mixed-treatment comparisons of response to treatment and weighted mean differences were conducted on specific scales to rate depression. On the basis of 234 studies, no clinically relevant differences in efficacy or effectiveness were detected for the treatment of acute, continuation, and maintenance phases of MDD.
  13. Earlier
  14. I started on x2 500mg tabs a day. I don't think we need more than that for HPPD because it's a low end dose for Keppra but now I take as needed which is either X1 500mg day or x2 but I would say start with x2 or atl at work your way up to that dose. I have zero side effects but initially I hear it can have some. Those will go away. Klonomopin or xanax both would work well since she might feel comfortable doing klonomopin over xanax I would say 1-2mg per day should be ok on either. print out the study's on this site showing her th science of it th xanax family of drugs affects the region of brain and calms the HPPD and together I find they managed my symptoms completely. I printed articles from this site showing the science and user experience to let my doc try maybe that will help you. Also for Keppra make sure you demand name brand. It's more expensive but makes world of difference. Worst case you can try for a while than try generic and see if still works. But if you try generic you will never know if bad effects are from generic or drug itself. Hope that helps good luck.
  15. ya she knows does anyone else get spurts where it's bad but then eases up and then gets bad again.
  16. Thank you very much for tour post! I have been 15 years with HPPD without trying any meds, I am better but I still have some very bad days I am about to try Meds, will meet with a neurologist soon I was wondering what protocol you used to begin with? was it: Kepra 500mg per day ?or two 500mg per day? for how long without changing the dose? Xanax (how much per day)? Hope you are great Best wishes Rafa
  17. Hi, I've been on this forums few years ago and some users may still remember me. I would like to start from my symptoms which are not exactly the same like the other users. I'm depressed, anxious especially in social situations,also I have diagnosed personality disorder from many years. I was treated for this condition for very long time, since now and never felt any relief. Last time when I visited my doctor I told him that I no longer believe in that my personality is my only problem. He's about to prescribe me clonozopinum and he states that this have to work, although only klonopin was giving me some relief in my entire life. The good news is that he is going to check what HPPD is. During writing this post I'm experiencing pain of my muscles of my jaw which shakes 24h per day as if I was coming out of from cold water I really struggle to write something sensible, especially not in my native language. I have problems with understanding, focus, reading and have this feeling that I could beat all these weird things which are ruining my life if I could focus, concentrate. but to be honest I'm not sure of anything I'm not sure if description of my last trip would be useful, as for now I would like to avoid it. Tell me guys what do you think about this because I don't feel as good to be a doctor for myself. What pills should I try at the beginning. I doubt that he would prescribe me klonopin since I was addicted to it. Also my EEG shows some unwanted anomalies, I was treated for epilepsy in some part of my life which I don't have. EDIT: I'm taking amisulpryd and finlepsin. The only thing that is taking me out from these feelings for an hour or more is gym. Every time I exercise I feel relief and I recover my mind. I experience afterimages Kind Regards
  18. Does she know you are going through this? Just let her know that if you are ever distant and unresponsive, it is not due to her, it's just an unfortunate part of the condition ... Generally though, just carry on with normal life as much as possible, you do learn to cope, even with dpdr
  19. I can live with the visuals but the dp/dr is what makes everything bad. I have a gf that i love very much, any tips on how to reconnect with her
  20. Impossible to say, i'm afraid. My personal view is stress is probably responsible for belated symptoms, which will tie in with anxiety too.
  21. accidentally posted it twice
  22. Omega 3's are mentioned a lot for there importance for brain health. Vitamin D can also pass the blood-brain barrier, so it should be investigated for mental health also. I drove over some papers on vitamin D and depression since yesterday, so I will share some of those here. Depression impacts quality of life and it is usually implicated to be self-caused. According to science, depression can be biological, therefore depression is not always a lack of spiritual perspective or a case of "bad" vibes. My conclusion from these papers is that most cases of depression are very situational. Vitamin D deficiencies are not rare, and can potentially have a healing affect with some cases, similar to anti-depressants. The optimal ways to get vitamin D in my opinion, is sunshine and mushrooms. I would stay away from raw mushrooms due to carcinogens reported in the literature. heat destroys them though. https://www.ncbi.nlm.nih.gov/pubmed/2132000 https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3751336/ Efficacy of vitamin D supplementation in depression in adults: a systematic review protocol "The efficacy of vitamin D supplementation in depression has raised lots of concern. Vitamin D is considered as a neurosteroid [56], and now it is attested that vitamin D metabolites can cross the blood–brain barrier [34]. Because of the widespread presence of vitamin D receptor in areas of the brain including the hippocampus which is associated with the development of depression [23], it could be speculated that there is a clinical effect of vitamin D on depression." https://www.ncbi.nlm.nih.gov/pubmed/26680471 Vitamin D in anxiety and affective disorders. "Reduced levels of vitamin or its metabolites have been reported in various psychiatric disorders. Insufficient levels of vitamin D in depressive patients have been confirmed by many authors. Significantly lower levels of calcidiol (vitamin D) were found in men and women with depression as well as in age matched patients with anxiety disorders. https://www.ncbi.nlm.nih.gov/pubmed/25713056 Vitamin D and the omega-3 fatty acids control serotonin synthesis and action, part 2: relevance for ADHD, bipolar disorder, schizophrenia, and impulsive behavior. "Serotonin regulates a wide variety of brain functions and behaviors. Here, we synthesize previous findings that serotonin regulates executive function, sensory gating, and social behavior and that attention deficit hyperactivity disorder, bipolar disorder, schizophrenia, and impulsive behavior all share in common defects in these functions. It has remained unclear why supplementation with omega-3 fatty acids and vitamin D improve cognitive function and behavior in these brain disorder"
  23. Welcome. Agreed. Stay away drugs including weed. Because you haven't dosed too many times chances are good that you'll see improvement over time. For many the anxiety is the hardest thing to deal with. Address that sooner than later. Try to stay focused and keep moving with life. I don't know enough about your situation to answer your question about DP/DR. Nor am i really qualified. That being said, anxiety can do a lot of strange things both physical and mental. Good luck!
  24. Thx jay i have a one more question since i developed dp/dr so late, is it more than likely from the anxiety then the hppd itself?
  25. Yes, if you are getting VS after drug use, that is very likely to be a form of hppd. Usual advice applies... stay away from all drugs (inc weed)... avoid caffeine and alcohol, where possible, minimise stress, eat healthy, do some excerise, do things that will take your mind of the symptoms. All the best, Jay
  26. it would really make my day if someone could write a replay:)
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