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  2. Wow nice find. This information needs to get out there
  3. This could certainly explain mydriasis and a lot of the visual aspects of HPPD, but not all of course. What about DP, anxiety and all the other crazy mental stuff that goes along with it? I wonder if the nerve damage is widespread, effectively running from the eye to the back of the brain where other visual processing occurs. This could certainly explain the DP feeling of viewing the world from the far back of your head I guess...
  4. I've never taken medication for this disorder. This isn't because I'm a strong person. Instead I didn't have access to competent medical professionals who could help. In the 80s hppd just wasn't a thing. So what helped? Simply put, meditation. I realize I say this in every post. That being said, it helps. It not only helps I think it made life possible. It doesn't cost anything, you don't need crystals or a guru. It's something we can all do and it works. At least it did for me. We have the ability to control our reality. However, one must commit to it. Just like learning how to play an instrument or learning a new skill one has to work at it. Ok, I'll step off my soapbox once again. I agree with KB. taking care of your body is important. Diet is part of being well. Not sure if that helps, but it's the path I chose.
  5. Thanks for the info im still pretty new to everything, so I didnt know what works and what doesnt. Ill take it all into consideration while I attempt to make a decision. Thanks again!
  6. Best thing that helped my anxiety was diet. I'm convinced I had underlying inflammation which triggered anxiety my whole life and played the key role in getting HPPD. Once I went paleo, stopped eating processed foods and added sugar, my anxiety completely disappeared. Recently I have been diagnosed with inflammation in my stomach and what do you know, anxiety was back again like clockwork. Also, meditation and therapy worked wonders for me. If you do a combination of all those, plus exercise and stay active socially you won't need pills. Whatever you do, if you do decide to go the pill route, stay away from benzos unless you're really disciplined and can handle it.
  7. Hey everyone I’ve been reading topics about anxiety treatments but I’m still pretty confused, I want to go on anxiety medication but dont know what works or what makes it worse so could I get some insight? Thanks, marce
  8. The biggest correlation with HPPD and any noticeable personality trait is anxiety, but people with anxiety often have depression too, and it's now known depression can often times be the result of inflammation; inflammation activates the sympathetic nervous system (fight or flight) as do many drugs (including LSD), and so in my opinion it's not too far of a reach to suggest HPPD is the result of nervous system burnout or overstimulation. There's also many stories of people who recover at around the five-year mark, exactly the same times it takes new neurons to grow inside the brain. I know I'm certainly one of these people. Obviously there needs to be research but unfortunately (or fortunately, depending on how you look at it) there simply isn't enough people getting HPPD at the moment to change this. Research is by and large funded privately, so unless some super rich person gets HPPD or knows someone who has it and wants to fund research, there's just not a lot of hope. Our biggest ally in this fight is the DP-DR and Visual Snow Syndrome communities, both of which seem to be growing at a rapid pace. These conditions all overlap so if we want to bring about change our best bet is to create a single foundation or some sort with them.
  9. Hey guys, I discovered this forum about 5 months ago upon acquiring HPPD, but just now decided to create an account and share my experience. It's one that I'm rarely able to relate to others'. My intent is not only to recount my own personal story, but to provide some of the valuable insight I have garnered in that time, be it information known to many here or not. This might be somewhat lengthy, but I want to write it out for those who may not fully understand what's happening in their minds as much as I can now, with what I've come to find out. To preface, and out of respect for those here who have it the worst, I'd like to state that as per the DSM-5 criteria for the disorder, I wouldn't truly say that I have an official case of HPPD, which is a term so scarcely understood by medical professionals and lends itself to be used as a misnomer. As it doesn't cause me significant distress or impairment, I am precluded from a certain diagnosis from a technical standpoint. However, I do have a form of the same condition everyone on this board shares, which I believe lacks a broader and more proper denotation. I have what you could describe as long-term effects from psychedelic use reminiscent of the trip that incited them. It is my opinion that there is little distinction between the positive effects reported by people in clinical trials involving psychedelics, and the hellish effects experienced by the unlucky few, at least in regards to the substance's mechanism of action in the brain. I believe these long term effects, benign or disruptive, are in essence the same thing, at different degrees of intensity and character, caused by the same long term neurological changes incurred by the human mind when treated with psychedelics. Just over 5 months ago, I took my 5th and 6th LSD trips only 2 days apart. ~300 and ~375 respectively. Up until then I had had great trips, and even tried a few micro-doses, all in the span of one summer. Those last two trips were good as well, but needless to say, I overdid it. After that last trip, a day or so went by where I felt relatively normal; then after smoking weed the next night, symptoms quickly appeared. What's odd is that they were much more mental than visual. As far as visuals are concerned, I had some mild tracers, and everything was sharper and brighter, with a strobe-like appearance to fast moving objects, and smoother motion to slower moving objects, which seems analogous to the shutter speed of a camera, or at least a biological equivalent in the human mind. My conjectural view of this is that the intensity of electrical signals in the visual cortex may increase due to a lack of inhibition, whereas their frequently decreases, accounting for the aforementioned phenomena. Mentally and even physically speaking, I felt like I was tripping on and off for over a week. I had an almost constant body high, my thoughts were somewhat erratic along with the feeling that part of my mind was still turned off or subdued, as happens during a trip. Namely, this decrease in mental acuity, which has often been described as brain fog, can be associated with a reduction of electrical activity in the DMN, or default mode network of the brain (specifically in the medial prefrontal cortex and anterior cingulate cortex), responsible for higher level intellectual processing. As this part of the brain becomes subdued, other areas begin to interact in ways they normally wouldn't, which brings about the trippy head space and the altered state of mind experienced during the acute effects of the drug. The way LSD binds with receptors in the brain is by becoming temporarily lodged in 5-HT2a (serotonin) receptors largely located on GABA releasing neurons. GABA is an inhibitory neurotransmitter. After the experience, these receptors are reabsorbed back into the cell and in average individuals take an average of a week or a bit longer to regenerate. This accounts for tolerance to the substance, but also has more drastic implications. I find it possible that in certain circumstances, such as when abusing psychedelics or possibly using them before the brain is done developing at the age of 25, these receptors may not be fully regenerated--possibly ever. Upon researching the role of 5-HT2A receptors I found that not only the higher their prevalence, the more prone you are to the effects of LSD, but more importantly, that in and of themselves, too vast an amount can actually be a cause for anxiety, depression, mental disorders such as OCD, etc. It makes sense to me that getting rid of a number of them can be therapeutic to the right kind of person with these circumstances, but can wreak havoc on someone else, depending on their own mental predisposition and how many of those receptors you're ultimately doing away with. Additionally, and most relevant to the visual symptoms so commonly reported, is the fact that without enough GABA being released, there is less inhibition in the visual cortex as well as other areas of the brain, causing hallucinations. This is likely why benzodiazepines, which cause the release of GABA, often help people with HPPD. A clinical trial with participants taking a single dose and reporting back a year later is much more conducive to remove only a small number of these 5-HT2A receptors long-term and improving the subject's state of mind compared to using the substance recklessly and causing too drastic of a change to be considered beneficial. As with anything psychological, an adequate balance in neural functioning and biochemistry is key, and complexity is the biggest piece of the puzzle in understanding this or any other mental alteration. There are other factors involved such as calcium and glutamate, but those I know less about. I'd appreciate anyone's contribution to scientific literature or publications about the matter. In my case (and I don't mean to encourage anyone to follow along my footsteps), I can somehow say that my condition was more beneficial than it was detrimental. Don't get me wrong, the first week was unnerving and felt like a constant microdose, with the mental effects in the following months being still very apparent, although they have mostly declined by now. I've come to realize a lot of the thought disruptions we get with this condition are due to an increase in mental entropy, which some people may find disconcerting and others derive creativity and different perspectives from. That distinction would be largely dependent on the intensity and scope of the change, and the person's reaction to it. However what happens is old thought patterns can be weakened and the potential for brain plasticity increases, leading many to view the world differently and have inexplicably different perception for a variable amount of time after the last dose. I took a 2 month sobriety break from everything after my onset. After that I cautiously started smoking weed again, until I realized I was fully able to and it had no ill effects on my mental or visual effects, even when I stopped again and took another break to make sure I wasn't merely deferring the symptoms--that being said, I can't say it hasn't prolonged their abatement. My visuals, however have only diminished ever so slightly. I tried salvia and it definitely exacerbated my symptoms, so I will be refraining from its use. What I've found in this time is that my mood had increased; I gained a better appreciation for the little things in life, and for several months I kept getting this great euphoric feeling, subtler than on a trip but noticeable and undoubtedly peaceful. For some time, I would also feel the expansion of my mind come and go, sometimes becoming incredibly apparent, which was honestly one of the biggest upsides to the whole thing since it felt incredibly pleasing. I was able to feel the inside of my mind at will, and I'm curious if anyone else here has experienced that. Of course, I don't mean to belittle those of you whose long term effects have been mostly or entirely negative, and offer my condolences with the knowledge that I can't fully imagine what that kind of severity would be like. The point I'm trying to make is that when taking a psychedelic there is a definite change that happens in most people's brains, if not everyone's, which can range from subtleties in mood and perception, to full-blown deleterious effects. I've experienced my share of cognitive dysfunction and DP/DR, but it's all mostly gone by now. I felt disconnected from reality for a while, but that too went away slowly. I feel as though my case fell somewhere between a positive and a negative long-term result from using psychedelics. My advice for anyone dealing with mild to moderate forms of HPPD is the same as anyone else on this forum will profess. Abstinence and patience. Also exercise. Hell when this first hit me I started eating healthy and exercising every other day. That along with the positive effects I was getting from from LSD use pretty much cured my depression for an entire quarter. All in all, I think the therapeutic merit that exists in psychedelics, of course not without it's very real risks, is entirely and incontrovertibly linked to responsible and moderate use, and on the individual's neurology. No, not their state of mind; granted, that can cause a bad trip, which can lead to PTSD, but I strongly believe there is a clear distinction between PTSD and what we call HPPD, even if they happen to be often co-morbid. In my case, I've always had an overactive mind, and being that the cause of most of my mental issues, LSD helped tackle the core of my problems. I have a high IQ, but I also consider myself slightly sociopathic. LSD in fact helped me regain some emotions that were all but foreign to me since childhood, such as empathy and affection. I have no doubt that if I'm not extremely careful with my drug use now, these positive effects may turn into unwanted ones, and just to reiterate, I'm advising the utmost caution to anyone who has had any indication of HPPD. Lastly, what I'm saying is that the change LSD has on the brain is obviously not just psychological but neurological, and more complicated than the few dedicated scientists studying it can fully comprehend, let alone all of us here on this forum. For that reason I think it would be a good idea to contribute what knowledge we have, which is obviously more anecdotal than rigorously scientific, and compile it somehow to create potentially useful data. Perhaps by creating surveys to find out exactly what circumstances led to which degrees of HPPD in this community, cross referenced with age and drug use history, frequency and amount of use, and duration of symptoms. TL;DR: At least read the last 2 sentences.
  10. So I've been dealing with HPPD for the past few months. Visual snow, light tracers, color shifts, halos, floaters and what not. However, I have this thing which doesn't happen everyday and happens only 2-3 times a day (if it happens) : When I focus at smth or someone, I get a small black dot with basically nothing in it. It is like suddenly, a very tiny part of my eye looses vision. Happens for a second only. Anyone else has that ? EDIT: Now that I think of it, if I look at a screen, usually in the dark with the device on dim settings and close to me, I see very very small pink dots moving and floating around. Also, they move around at about 15 fps, just like a computer who can't process a video fast enough and ends up with messed up framerate. What's going on xD Was wondering if anyone else has these weird symptoms which I could not find on the web.
  11. hppd

    I personally don't have experience with antipsychotics, but after having HPPD and obsessively searching stuff online for about 6 months now I can pretty confidently say don't mess around with those. Nearly everyone says its help is only very, very short term and that once you decide to go off your visuals will be unbearable. So you could either keep taking benzos, get better temporarily to the point where you develop a tolerance, and then have an insanely horrible experience tapering off them, or just not mess with it at all.
  12. Hey all, been a bit since I've posted here. I've been holding up well, and even though I get the occasional DP/DR, I'm managing. I'm heading back to school real soon, and was wondering if anyone had any experience with non-stim ADD meds. Used to take Adderall, but had some really bad DP/DR the day after, and have read that in general stims are not great for HPPD. Doc just prescribed me some Intuniv ER (Guanfacine HCL ER) and said it should kick in after a couple weeks. I'm worried if I should even start taking it though, and pretty much no one has any input on non-stim ADD meds with HPPD online. If anyone's had some firsthand experience, or even some scientific as to why it should/shouldn't make my HPPD worse, I'd greatly appreciate it
  13. Hey all, been a bit since I've posted here. I've been holding up well, and even though I get the occasional DP/DR, I'm managing. I'm heading back to school real soon, and was wondering if anyone had any experience with non-stim ADD meds. Used to take Adderall, but had some really bad DP/DR the day after, and have read that in general stims are not great for HPPD. Doc just prescribed me some Intuniv ER (Guanfacine HCL ER) and said it should kick in after a couple weeks. I'm worried if I should even start taking it though, and pretty much no one has any input on non-stim ADD meds with HPPD online. If anyone's had some firsthand experience, or even some scientific basis as to why it should/shouldn't make my HPPD worse, I'd greatly appreciate it
  14. Earlier
  15. There is not much that I know of, these are two links I had stored:
  16. First of all thank you for the answer. I will consider changing doctor but since it is my doc from 2016 I would like to prove him somehow that HPPD exists and it's treated by other meds than anti psychotic(he thinks it's the same condition which he learned in medical school). Are there solid proofs of exisiting HPPD? Are there any studies of the treatment? I would like to be extremely prepared for the next visit to avoid treatment for conditions which are not related to me.
  17. Don;t let doctors dictate your condition... If you think you have hppd, keep changing doctors until you find one that believe you and is willing to learn about it. Doctors will often say you are psycotic or depressed, it is easier for them to understand and "treat" (even if it makes you worse)
  18. my symptoms stay the same... visuals, dpdr etc... but I do get days where I feel in a good mood or bad mood, with less or more anxiety. (sunny days seem to make me feel better)
  19. I have just came from my doc, he prescribed me biggers dosages of finlepsin and aimsulpryd. Next visit will be after a month, he claims that I'm close to psychotic state. I'm not sure about anything, going to do whatever he recommends because I don't see any alternative.
  20. Some research I found on anti-depressants efficacy and comparisons with placebo. Worth a read. From Harvard Antidepressants and the Placebo Effect Even the small statistical difference between antidepressants and placebos may be an enhanced placebo effect, due to the fact that most patients and doctors in clinical trials successfully break blind. The serotonin theory is as close as any theory in the history of science to having been proved wrong. Instead of curing depression, popular antidepressants may induce a biological vulnerability making people more likely to become depressed in the future. The most commonly prescribed antidepressants are SSRIs, drugs that are supposed to selectively target the neurotransmitter serotonin. But there is another antidepressant that has a very different mode of action. It is called tianeptine, and it has been approved for prescription as an antidepressant by the French drug regulatory agency. Tianeptine is an SSRE, a selective serotonin reuptake enhancer. Instead of increasing the amount of serotonin in the brain, it is supposed to decrease it. If the theory that depression is caused by a deficiency of serotonin were correct, we would expect to make depression worse. But it doesn’t. In clinical trials comparing the effects of tianeptine to those of SSRIs and tricyclic antidepressants, 63% of patients show significant improvement (defined as a 50% reduction in symptoms), the same response rate that is found for SSRIs, NDRIs, and tricyclics, in this type of trial (Wagstaff, Ormrod, & Spencer, 2001). It simply does not matter what is in the medication – it might increase serotonin, decrease it, or have no effect on serotonin at all. The effect on depression is the same. What do you call pills, the effects of which are independent of their chemical composition? I call them “placebos.” From Duke and Brown University Antidepressants versus placebo in major depression: an overview As of now, antidepressant clinical trials have an effect size of 0.30, which, although similar to the effects of treatments for many other chronic illnesses, such as hypertension, asthma and diabetes, is less than impressive. Comparative benefits and harms of second-generation antidepressants for treating major depressive disorder: an updated meta-analysis. Meta-analyses and mixed-treatment comparisons of response to treatment and weighted mean differences were conducted on specific scales to rate depression. On the basis of 234 studies, no clinically relevant differences in efficacy or effectiveness were detected for the treatment of acute, continuation, and maintenance phases of MDD.
  21. I started on x2 500mg tabs a day. I don't think we need more than that for HPPD because it's a low end dose for Keppra but now I take as needed which is either X1 500mg day or x2 but I would say start with x2 or atl at work your way up to that dose. I have zero side effects but initially I hear it can have some. Those will go away. Klonomopin or xanax both would work well since she might feel comfortable doing klonomopin over xanax I would say 1-2mg per day should be ok on either. print out the study's on this site showing her th science of it th xanax family of drugs affects the region of brain and calms the HPPD and together I find they managed my symptoms completely. I printed articles from this site showing the science and user experience to let my doc try maybe that will help you. Also for Keppra make sure you demand name brand. It's more expensive but makes world of difference. Worst case you can try for a while than try generic and see if still works. But if you try generic you will never know if bad effects are from generic or drug itself. Hope that helps good luck.
  22. ya she knows does anyone else get spurts where it's bad but then eases up and then gets bad again.
  23. Thank you very much for tour post! I have been 15 years with HPPD without trying any meds, I am better but I still have some very bad days I am about to try Meds, will meet with a neurologist soon I was wondering what protocol you used to begin with? was it: Kepra 500mg per day ?or two 500mg per day? for how long without changing the dose? Xanax (how much per day)? Hope you are great Best wishes Rafa
  24. Hi, I've been on this forums few years ago and some users may still remember me. I would like to start from my symptoms which are not exactly the same like the other users. I'm depressed, anxious especially in social situations,also I have diagnosed personality disorder from many years. I was treated for this condition for very long time, since now and never felt any relief. Last time when I visited my doctor I told him that I no longer believe in that my personality is my only problem. He's about to prescribe me clonozopinum and he states that this have to work, although only klonopin was giving me some relief in my entire life. The good news is that he is going to check what HPPD is. During writing this post I'm experiencing pain of my muscles of my jaw which shakes 24h per day as if I was coming out of from cold water I really struggle to write something sensible, especially not in my native language. I have problems with understanding, focus, reading and have this feeling that I could beat all these weird things which are ruining my life if I could focus, concentrate. but to be honest I'm not sure of anything I'm not sure if description of my last trip would be useful, as for now I would like to avoid it. Tell me guys what do you think about this because I don't feel as good to be a doctor for myself. What pills should I try at the beginning. I doubt that he would prescribe me klonopin since I was addicted to it. Also my EEG shows some unwanted anomalies, I was treated for epilepsy in some part of my life which I don't have. EDIT: I'm taking amisulpryd and finlepsin. The only thing that is taking me out from these feelings for an hour or more is gym. Every time I exercise I feel relief and I recover my mind. I experience afterimages Kind Regards
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