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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

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  1. Today
  2. If anybody has any history of autoimmunity please say so. I've been wondering a lot about this lately since I've been battling all kinds of autoimmune issues. I also have autoimmunity running on both sides of my family. At the heart of autoimmunity is the simple fact that our bodies have developed incredible defense mechanisms to fight naturally occurring diseases over the course of millions of years but ever since the Neolithic Revolution and the invention of agriculture we've been putting things into our bodies that our bodies don't recognize and so our defense systems logically ramp up. Modern drugs firmly fit into this category. Our bodies have not evolved to recognize many of the street drugs that are notorious for giving people HPPD. Perhaps someone who knows more about this subject could chime in?
  3. Yesterday
  4. jbalsa2

    NeuroSteroids

    Wow thats actually really funny. I've said that exact thing too... kind of like a little autistic but not really. Don't mean to derail the topic but I read that little bit, and in my head im thinking wow I thought I was the only one. I got it from my dad as well. Like a little tiny neurological blip in the way my brain functions that causes me to be extremely highly functional but also completely cognitively ignorant of social cues, and behaviours - or hints. I just don't respond and carry on as if it hadn't happened. (Mine became 10x worse when I got HPPD versus before I had it)
  5. VisualDude

    NeuroSteroids

    Yea, you were probably on cortisol as it helps lungs and things in that case. I was a little pre and had breathing problems for 4 months (turn blue and needed to be revived). Don't know all what that did but it could not have helped, lol. My social cue thing is genetic from my dad's side but I have it worse. So never have known otherwise. Kind of autistic like but not that. The visual damage was from a chemical exposure. Eyesight was great before. However other problems were magnified. I do well with dopamine meds and a little gabapentin and klonopin. One dopamine med, cabergoline, gave me the first taste of reading social cues besides the 'loud' ones like anger. Cabergoline is a strong D2 agonist. Recently, DHT further help visual problems and introduced feeling emotions that I began 'reading'. Cabergoline helped just the intellectual aspect. Curiously, DHT also influences D2 receptor function. Can't help wondering if others would benefit at least regarding DP/DR and some visual aspects of HPPD. Sexual function as well. Can I really be so unique? It would seem unlikely.
  6. jbalsa2

    I think I have HPPD of some sort and need help

    Oh christ no, you'll learn to adapt. For me i've certainly had to make some changes to my life - but I have used this as an experience to redirect my life in a slightly different direction. For what it's worth, I take 1000mg of Keppra a day, which really helps me with my depersonalization and derealization. Give yourself time - it could take years, but youl get better. Just keep your nose clean, if you know what I mean.
  7. imZanderr

    I think I have HPPD of some sort and need help

    Thank you, I’m just paranoid I fucked up my brain forever and it will only get worse over time leading to a life of meaningless
  8. jbalsa2

    NeuroSteroids

    @VisualDude no experience using neurosteroids - I was on enough of them as a baby having been born 3 months premature. 😂 On an unrelated but related note - has HPPD destroyed your ability to read and respond to subtle social cues? Mine certainly has, however my doc has diagnosed it as borderline personality disorder or a complication from being born premature.
  9. jbalsa2

    I think I have HPPD of some sort and need help

    They'll become much less of a burden on your mental state as time goes on - let me put it this way, i've had HPPD for 3 years now and I drink every weekend, among other things. At the very onset of my HPPD I couldn't leave my room. So - yes things will improve over time.
  10. imZanderr

    I think I have HPPD of some sort and need help

    Also, will I ever be able to drink alcohol again?
  11. imZanderr

    I think I have HPPD of some sort and need help

    Thanks, and referring to earlier you’re saying that symptoms will lessen overtime until baseline? Just making sure
  12. VisualDude

    NeuroSteroids

    Wondering if anyone has experiences relating to neurosteroids ? Neurosteroids are just hormones and hormone metabolites that influence brain function. To illustrate: estradiol levels affect memory, testosterone enhances goal orientation and focus, the DHT metabolite 3α-Androstanediol is know to have "rewarding, anxiolytic, pro-sexual, and anticonvulsant effects" https://en.wikipedia.org/wiki/3α-Androstanediol The topic CAN be an IS complicated. Here is an excellent text regarding neurosteroids and seizures: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3728472/ . Of course its relevance here is that HPPD is a constant pre-seizure state and HPPD at times responds to GABA alterations and neurosteroids actually modulate and can activate GABA receptors but don't loose effectiveness such as taking a benzodiazapine does. I PROPOSE THAT THIS IS A KEY AREA OF RESEARCH THAT HAS NOT BE EXPLORED FOR HPPD. Certainly hormone manipulations, particularly DHT and DHT derivatives substantially help my visual issues and other issues. DHT is not only a "positive allostatic GABA modulator", it also has strong influence with D2 receptor function (a personal nemesis). This subfunction relates to reading social cues and I suspect may related to DP/DR. Now rather than make this complicated or get hung up regarding the technicalities of the subject, it comes down to does anyone notice effects from medication or changes in: Estrogen Testosterone DHT Progesterone DHEA Cortisol Oxitocin Finisteride Anastrozole The list is not exhaustive but these are major players. Here is a bigger list https://en.wikipedia.org/wiki/List_of_neurosteroids Thank you for your paticipation
  13. jbalsa2

    I think I have HPPD of some sort and need help

    I like this stuff, plus you can order it online. https://www.davidstea.com/ca_en/tea/organic-mothers-little-helper/10233DT01VAR004072.html Otherwise, melatonin works well, and if you really need the help you can always talk to your family doc about the occasional ativan.
  14. imZanderr

    I think I have HPPD of some sort and need help

    If only! I live in a small town the best thing we have is Dakota Coffee haha. I shouldn’t be complaing much though my symptoms are mild compared to some people on here. If only there was a cure
  15. jbalsa2

    I think I have HPPD of some sort and need help

    Melatonin won't have any negative effect on your HPPD. You should go to one of those fancy tea places and get yourself a nice calming herbal tea perhaps.
  16. Hmm, maybe ambien is different - i've taken zopiclone (Imovaine) which has a very similar moa and found that it was almost identical to taking an ativan or two. Maybe just take a milligram or two of ativan if you find you need the help getting to sleep.
  17. Are these neuro autoimmunities tested from blood or csf?
  18. imZanderr

    I think I have HPPD of some sort and need help

    Thanks J. Also, how in the world am I supposed to sleep without any sleep aids? I’m afraid melatonin could have adverse effects
  19. Onemorestep

    How does Ambien effect HPPD?

    I don’t mean to contraindicate jbalsa... but you should not take ambien. It’s too mich of a hypnotic and has a high chance of making your hppd worse—mental and physical. If you google around, you’ll find evidence for it doing this. People have been known to have hallucinations in it that seem oddly similar to delirient drugs. While some drugs are hit or miss for effecting hppd, I highly recommend you look elsewhere for sleeping aids. I’ve taken melatonin and trazadone in the past (although the later many people don’t react well to with hppd according to posts on this website).
  20. jbalsa2

    I think I have HPPD of some sort and need help

    Yeah it's quite common for people to develop HPPD weeks and months later. Certainly wait a couple of months and see how things go. If you can, abstain from using any form of benzodiazepine until your sure that you've hit your baseline, as using a benzodiazepine before then can confuse your senses into what your baseline actually is - causing you to think things are getting worse when they are not. If perhaps, 6 to 8 months down the road, you feel like you'd like to try out some medications to help you, you can check out my thread regarding available medications below - although I would recommend sticking it out for as long as you can without medications and seeing if you can recover naturally. Good luck
  21. imZanderr

    I think I have HPPD of some sort and need help

    See I feel weird cause my last trip was in June, and I didn't develop the trails until November...so maybe it's placebo for me but I really don't know
  22. jbalsa2

    I think I have HPPD of some sort and need help

    Yeah it really took me about 2 months to stabilize, but you will adjust soon enough. For what it's worth I wasn't able to leave my room for like a week after mine started. Did your trails appear well after your last trip? Or did your trip lead right into your HPPD? For me I was tripping, went to bed, and then woke up the next morning still tripping, and haven't really stopped since.
  23. imZanderr

    I think I have HPPD of some sort and need help

    I noticed trails a couple weeks ago, and visual snow I feel like has gradually gotten worse over the last few days which I hope baselines. I need to quit nicotine most likely I am heavily addicted to it. Hope you are well
  24. jbalsa2

    I think I have HPPD of some sort and need help

    Hey there Zander, How long has it been since your HPPD has set in? Typically things gradually improve over the course of a few months - until you get to your baseline, which is the point that your HPPD hits a point where it stays the same. If you smoke weed at all, i'd recommend that you stop - any drug use will cause your symptoms to become significantly worse. If you really need some relief from your symptoms for a short while, you can always see your family doctor and have some ativan prescribed to you, just don't get too heavy into them, they're only a temporary solution to help you adjust to your new set of symptoms. Other then that, if you continue to live healthy habits, your HPPD should only improve over time.
  25. Hello there, I'll get right to it. The main thing I am worried about is my symptoms getting worse to the point where I can't function. Right now I have trails and some visual snow that's not too bad. I'm worried these symptoms will get worse over time even if I stay sober and healthy and I'll be screwed forever. Any advice on what to do and how to deal with this would be much appreciated. I am in college and need to keep my grades good but my anxiety about this is deterring from that.
  26. Last week
  27. Simon Templar

    Thiamine Cocarboxylase

    I realize this thread is old, but I found it through a Google search and registered to thank VisualDude for creating the post. I also thank him and everyone else for the many pages of questions and comments. While I do not have HPPD, I have other challenges and spent the past several years visiting doctors, having lab tests, and spinning my wheels with little progress. One of my lab tests (NutrEval Plasma) reported I'm low in B-vitamins -- particularly B1. Though I've tried various methylated B-complex products (I have a single C677T gene mutation), I've never noticed any benefit. After reading this thread, however, I'm planning to try the Bio-3B-G product from Biotics Research. Though I have no idea if the product will make a difference, at least I have something new to try. Doing something is usually better than doing nothing. So, I now have something for which to be hopeful. From what I've read, this is a pretty amazing forum with some really smart, supportive, and caring people. I wish you all health and happiness. Sincerely, Simon
  28. https://www.kpbs.org/news/2018/nov/02/parkinsons-patients-preparing-brain-cell-replaceme/ This could help HPPD, or am I wrong?
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