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Hallucinogen Persisting Perception Disorder (HPPD) Support Forum

  • I AM SO SORRY. I did not realize the gallery I used to upload my images sent an email to everyone on the site. This is a terrible oversight by me. My sincerest apologizes. I just noticed this. 

    - David Kozin

  1. Main Forums


      This is the catch-all forum for posts. Discuss anything related to Hallucinogen Persisting Perception Disorder (HPPD) here.

    2. Introductions

      A place to introduce yourself to the community and what you hope to seek out on this site. New members may share their experience and onset of HPPD and what drug(s) triggered it.

    3. Symptoms: Descriptions, Discussion, Debate

      What are the symptoms? What do you feel encompasses HPPD?

    4. Medications & Other Treatments

      The place to discuss pharmacological and other treatment options.

  2. Active and Future Research

    1. Research Articles, Publications and Studies

      Articles, publications and studies for review and discussion.

  3. Community Area

    1. Community Open Space

      This is a location to talk about anything except your symptoms. Be respectful of other users, but any topic within the rules are open for discussion.

    2. Forum Information, Questions and Suggestions

      Is the forum missing something? Do you have any ideas or suggestions? Any problems or questions? Post them here.

  • Hallucinogen Persisting Perception Disorder (HPPD) support forum - HPPD, flashbacks, drug-induced visual snow syndrome and depersonalization/derealization.

    Common HPPD symptoms: visual snow, palinopsia (trails/afterimages), increased BFEP, increased floaters, ghosting, halos, starbursts, macropsia/micropsia, geometric hallucinations, closed-eye visuals, flashbacks, depersonalization/derealization, anxiety, depression, brain fog, cognitive dysfunction, tinnitus.

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  • Latest Posts

    • I know, it's frustrating for me too. The formula in 1998 should have been the formula I listed, as it sounds like that was the only formula until 2006. What's more frustrating for me is that there are HPPD researchers ready to go awaiting funding, and I contacted David Kozin on Twitter because I know he knows helpful people, yet he ignored me and didn't respond. Wish there was a way to get him to visit his own damn site... A side note on DXM, a little off-topic: I remember there was a dedicated DXM forum, The Dextroverse, and I remember in the time I was there that it sounded like a LOT of people there had HPPD symptoms (visual snow especially) and dissociative disorders, and some came across as suffering from psychosis.
    • Yeah, at that time (1998)  i was using actifed to sleep in a regular way and had a few codeine doses... I tried to find the formula of Actifed back then but it's hard to tell. Pseudo ephedrine is now also well known to cause brain vascular events... Damn, how come we all cannot find a common pattern or trigger , i'm pretty sure we are all missing something crucial.
    • Sorry, because I had to leave for work when replying to you I never got to answer your question about diazepam dosage. Now that I'm taking pharmaceutical diazepam my dose has dropped considerably but I take at least 100mg a day but sometimes up to 150mg, mainly in the evening, I was taking 2 or 3 10mg tablets before work then another 2 or 3 when I got home then before bed I take at least 4 or 5  and I tend to wake up every couple of hours for the toilet which is extremely annoying but lots of tests including a camera into the bladder and nothing wrong has been found so sometimes when I'm trying to get back to sleep and I'm unable to relax my eyes I end up taking up to another 5 10mg tablets it just depends. Because of the lock down in Scotland all the gyms are closed so I try to keep as active as I can during the day but I find it hard to motivate myself and am dying for the gyms to reopen as this was what really saved me while I was in prison, having access to cardio equipment on the wing I used the x trainer and exercise bike half an hour each every day and was allowed 3 days during the week at the big gym where I started training with long term prisoners and this tired me out, combined with the amitriptyline dose which was the only painkiller they would give me, enough to manage to get enough sleep to get by although without access to benzodiazepines my eye muscles were always strained and sore and although my anxiety levels were better than when I started the sentence I avoided speaking to anyone if possible and kept myself to myself, constantly doing laps of the wing to pass time and to further exhaust myself. The only person who I was able to have any real conversation with rather than the shit prisoners tend to speak about was with the clinical psychologist who has been the best person I've worked with in trying to explain my symptoms and I have been out of prison since the 31st of January and I'm still waiting to get to see another psychologist. I am basically self isolating at the moment as my neighbours are crazy, they smoke crack and take valium for fun which was why I ended up taking so many dodgy street valium tablets after getting out. But after my brother got me set up with proper diazepam and now also alprazolam I've politely told them that I cant keep hanging around with them as I really want to make the most of my life and make sure I never end up in jail again which would only be a matter of time if I was to continue keeping myself in the company of my neighbours. I am praying that the lock down will ease of enough soon so that I can move into supported housing, I already see a support worker once a week but she has no idea how long I'm stuck here for but when she comes we are making a step by step plan to make sure my needs are best met when I can eventually move to one of their secure units. Also they will be able to come to doctor, psychology and psychiatrists appointments with me so I will feel less intimidated by the person I'm seeing and from previous experience of having support workers at appointments I know I will be listened to more and taken more seriously.  Things are starting to move in the right direction for once but I really only have myself to blame for being so reckless and not putting in the effort needed for my life to start getting better. The biggest challenge will always be managing my benzo use and I'm taking it far more seriously than I ever have as I know that nothing else eases the different symptoms in the same way so if I abuse them again I know what's going to happen again.
  • Recent Status Updates

    • csivel13

      my email address is cal.sivel13@gmail.com and ph. 484-577-5985 thnx
      · 0 replies
    • Kleine

      If you don't know what your talking about if your not a medical professional don't try to diagnose me I did lots lots of acid my symptoms did not start until I had a bad trip I remember the trip vividly I have been under the care of psychiatrist and therapist ever since my pet peeve is people who think they know something if Ithink I don't know if know I don't think
      · 0 replies
    • Kleine

      I am an artist in love with nature I find writing poetry and songs taking pictures and painting is great outlet for my insanity
      · 2 replies
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